The logjam at the ports of Los Angeles and Long Beach - which handle 40 percent of all waterbound imports to the U.S. With upwards of 80 container ships languishing off the coast of Southern California, patients and medical suppliers are worried that stories like Genung’s will become increasingly common. “It’s an ongoing saga of delayed shipments,” said Myah Genung, Henry’s mother, who lives in Los Angeles with her husband Dillon and son. His tracheostomy tube is supposed to be replaced weekly, but the Genung family has been unable to get new tracheostomy tubes since September. Henry Genung was born with CLAPO syndrome, which causes malformations of the lymph nodes and obstructs his breathing. Their medical supplier and doctor’s office told them they don’t know how soon new supplies will be available. Instead, Henry’s parents have resorted to soaking his used tubes in hydrogen peroxide and boiling them for five minutes. Born with a rare genetic mutation that blocked his upper airway, Henry, who is now 18 months old, will need the tube for several more years.įor three months, Henry hasn’t had a new rubber tracheostomy tube even though doctors recommend that they be replaced weekly to reduce the risk of infection. When Henry Genung was four months old, doctors cut a hole in his windpipe and inserted a tube to help him breathe.
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